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The Adult Cystic Fibrosis Centre

The Adult Cystic Fibrosis Centre was established in 1994 and now looks after over 330 adults with CF from throughout the Eastern Region.

The service is supported by a multidisciplinary team including: 7 CF specialist consultants, 4 CF specialist nurses, a dedicated ward nursing team, research nurses, specialist physiotherapists, dieticians, pharmacists, social workers, psychologist, psychiatrist, secretaries and management team.

Patients are seen in specialist CF clinics according to their sputum microbiology: non-Pseudomonas, non-epidemic Pseudomonas aeruginosa, epidemic Pseudomonas aeruginosa, Burkholderia cepacia complex, Mycobacterium abscessus and MRSA clinics occur weekly. The Centre also provides a 24/7 emergency service for people with CF who are acutely unwell.

CF inpatients are cared for on the CF ward, which has 10 ensuite rooms, each with air conditioning, WIFI, a lap top, 40inch flat screen TV and Wii Fit. The CF ward also has a gym with state of the art exercise equipment. People with Burkholderia cepacia complex, Mycobacterium abscessus or MRSA are looked after in ensuite rooms (with the same facilities + exercise treadmill) adjacent to the CF ward.

The Papworth Adult CF service also provides specialist CF psychological medicine clinics, CF diabetes clinics with the Addenbrooke's diabetes team, and specialist CF liver disease clinics with the Addenbrooke's hepatologists.

Annual CF transition clinics are performed jointly with the paediatric teams to meet children and families prior to their care moving to the adult service. We currently do transition clinics at Great Ormond Street Hospital in London, Addenbrooke's Hospital in Cambridge, Hinchingbrooke Hospital, Ipswich Hospital, Luton & Dunstable Hospital, Kettering Hospital, Peterborough Hospital and Chelmsford Hospital.

In 2005 and 2009 the Cystic Fibrosis Trust awarded training grants to The Adult Cystic Fibrosis Centre at Papworth to train doctors aspiring to become CF specialist consultants in the future.

The Adult CF Centre at Papworth has an international reputation for translational and clinical research. The research program is led by Professor Andres Floto (Professor of Respiratory Biology at the University of Cambridge) who has research laboratories at the Laboratory of Molecular Biology and at Papworth Hospital. The centre also has an excellent track record in multi - centre research studies evaluating new therapies for people with cystic fibrosis.



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